Resources

Fragile Kids Foundation acknowledges that the challenges caregivers of special needs children face are immense and unique.  Many of our nonprofit partners and healthcare providers offer resources in a variety of areas to support families caring for medically fragile children.

Referral Partners and General Support of Medically Fragile Children

Traumatic Brain & Spinal Injury Trust Foundation of Georgia
www.bsitf.ga.us
Phone:  888.233.5760

Bert’s Big Adventure
Support to families of medically fragile children or children diagnosed with a terminal illness with an annual all expense paid trip to Disney world. www.bertsbigadventure.org

Travis Roy Foundation for Spinal Cord Injury Survivors & Research
Grant program offers assistance with home modification and equipment
www.travisroydoundation.org
Phone: 617.239.0556

Chapel Hill Training Outreach Program
Links to a respite locator service listed alphabetically by city for locations in Georgia.
http://chtop.org/Search-For-Respite.html

United Cerebral Palsy of Greater Atlanta
www.ucpga.org
Phone: 770. 676.2000

Champions for Children
Helps provide financial assistance for supportive services to help cover the cost of caring for their children at home
www.championsforchildrenga.org

Parent to Parent of Georgia
Statewide network of parents who’s children have disabilities or chronic illness
www.parenttoparentofga.org
Phone: 800.229.2038

Brain Injury Association of Georgia
Provides community support programs assisting individuals and their families to have a better understanding of the effects of brain injury and to facilitate rehabilitation opportunities.
www.braininjurygeorgia.org
Phone:  800.444. 6443

Kiddos Clubhouse Foundation
Provides children with scholarships for critically needed physical and occupational therapy.www.kiddosclubhousefoundation.org

Down Syndrome Association of Atlanta
DSAA enhances the lives of individuals with Down syndrome and their families through support, education, advocacy and awareness.
www.atlantadsaa.org
Phone:  404.320.323

Easter Seals of North Georgia
Provides services, education, outreach, and advocacy so that people living with disabilities can live, learn, work and play in our communities.
www.easterseals.com
Pediatric therapy services in-home, at childcare centers or at Easter Seals locations
www.northgeorgia.easterseals.com

FOCUS (Families of Children Under Stress)
FOCUS provides emotional, informational, and physical support to parents of children with disabilities or with ongoing medical needs. FOCUS families deal with a variety of developmental delays, including rare syndromes, cerebral palsy, heart problems, immune deficiencies, and neurological involvement
www.focus-ga.org/
Phone:  770.234.9111

Governor’s Council of Developmental Disabilities for Georgia
http://web.me.com/gcdd/GCDD/
Phone: 404.894.5790

Marcus Center
Providing information, services and programs to children with autism and related disorders, their families and those who live and work with them.
www.marcusinstitute.org
Phone: 404.727.9450

Spina Bifida Association of Georgia, Inc.
Promotes the achievement of full potential for persons born with spina bifida while emphasizing the prevention of this birth defect.
www.spinabifidaga.org
Phone: 770.939.1044

March of Dimes
Provides educational materials which promote the health of babies by preventing birth defects and infant mortality.
www.marchofdimes.com
Phone:  404.350.9800

Brain Tumor Foundation for Children, Inc.
Provide financial assistance, social support, and information for families of children with brain and spinal cord tumors.
www.braintumorkids.org
Phone: 404.252.4107

Shepherd Center
Specializes in medical treatment, research and rehabilitation for people with spinal cord injuries, acquired brain injuries, multiple sclerosis, chronic pain and other neurological conditions.
www.shepherd.org
Phone: 404.352.2020

CURE Childhood Cancer
CURE Childhood Cancer is focused on supporting childhood cancer experts, locally and nationally, who are working daily to discover the ultimate solution.
www.curechildhoodcancer.org
Phone: 770.986.0035

Georgia Organization of Parents of Blind Children (GOPBC)
A national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.
www.gopbc.org
Phone:  404.371.1000

Prevent Blindness Georgia
Volunteer health agency provides free vision screenings for pre-kindergarten classes
www.pbga.org
Phone 404.266.0071

National Kidney Foundation of Georgia
Provides dialysis clinical referral, vocational rehabilitation, financial assistance, summer camp etc.
www.kidneyga.org
Phone: 770.452.1539

Annandale Village
Provides residential services, day programming and skilled nursing care for adults with developmental delays
www.annandale.org
Phone:  770-945-8381

Muscular Dystrophy Association
Provides informational materials, networking/matching, referrals to local resources and summer camps
www.mdausa.org
Phone:  770.973.3269

Myasthenia Gravis Foundation
Provides information, education and support.
www.ga-mgfa.org
Phone:  770.973.3269

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Prader-Willi Syndrome Association of Georgia
Provides education and advocacy information on Prader-Willi Syndrome, respite, individual and family support
www.pwsaga.org
Phone:  770.886.2334

Specialty Resources for Children with Physical and Medical Challenges:

Lekotek of Georgia
Teaches new and creative ways to make play successful and interactive for children with special needs.  Loans adapted and traditional toys for families to use at home and provides individualized support and resources to build on existing family strength
www.lekotekga.org
Phone:  404.633.3430

FODAC – (Friends of Disabled Adults & Children)
Provides assistance with donated and refurbished medical equipment and may assist towards funding to build a ramp for home accessibility.
www.fodac.org
Phone: 770.491.9014 or 866.977.1204

Abilitations/Integrations
Catalogs, products, and information provide solutions for professionals and parents working with and raising children with special needs.
www.abilitations.com
Phone:  800.850.8602

Tech Able
Provides individuals with disabilities, their families and support professionals access to assistive technology devices through a lending library, demonstrations, training classes, information and referrals.
www.techable.org
Phone:  770.992.6768

Atlanta Alliance on Developmental Disabilities
Provides advocacy, collaborative recreation programs, referrals, transportation services, life skills training for students and more.
www.aadd.org
Phone:  404.88.9777

ATLANTA AREA SCHOOL FOR THE DEAF (AASD)
Phone: 404.926.7101

Georgia’s Unlock the Waiting List Campaign
Advocates working to eliminate waiting list for home and community based services for people with disabilities.
www.unlockthewaitinglists.com
Phone: 877.WAITLIST

Adaptive Learning Center
Maximizes the potential of young children with disabilities, and creates awareness and acceptance between people with and without disabilities.
www.adaptivelearningcenter.org
Phone: 770.509.3909

Elaine Clark Center for Exceptional Children
Accredited, non-profit early-intervention program dedicated to special needs children from 6 weeks to 12 years old.
www.elaineclarkcenter.org
Phone:  770.458.3251

Frazer Center
Child development center and adult day services.
www.thefrazercenter.com
Phone: 404.377.3836

Stepping Stones
Preschool program of the Atlanta Speech School for children ages 3 and 4 with speech and/or language difficulties.
www.atlantaspeechschool.org
Phone:  404.233.5332

Atlanta Ronald McDonald Houses
Provides temporary housing and emotional support to families of critically ill and injured children who must travel to Atlanta area hospitals.
www.armh.com
Phone:   404.847.0760

Hope House Children’s Respite Center
Provides onsite respite care for medically fragile children and in-home respite care for other special needs children.
www.swchristiancare.org
Phone:  770.634.4222

Metro Atlanta Respite & Developmental Services
Offers respite services as well as an early intervention program, inclusive childcare center an d therapy services.
www.mards.org
Phone: 404.691.5570

A Labor of Love
Offers consulting and assistance to parents of children with disabilities complete the Deeming Waiver forms and assit in organizing information to be sent.
www.kbhelp.net
Phone 678.313.1527

Special Olympics Georgia Family Action Network
Parent organization offers support and activities for families.
www.specialolympicsga.org
Phone: 770.414.9390

ALTA Foundation Wheelchair Tennis
Offers free instructional clinics in spring and fall.
www.altatennis.org
Phone:  770.339.5788

BlazeSports
Sports summer camps for youth ages 10-18 with physical disabilities.
www.blazesports.com
Phone:  770.850.8199

American Association of Adapted SPORTS Programs
Interscholastic sports for kids with physical disabilities – elementary through high school.
www.adaptedsports.org
Phone:  404.294.0070

Hope in the Meadows
Offers a full inclusion day camp for campers with developmental disabilities ages 6-18.
www.heartofhopeacademy.org
Phone 404.816.3867

Lekotek Summer Computer Camp
Campers with physical, cognitive and/or sensory disabilities learn with siblings and peers to play using adaptive technology.
www.lekotekga.org
Phone  404.633.3430

Spina Bifida Summer Program
Focuses on independent living, mobility, social and cognitive skills
www.choa.org
Phone:  404.785.2244

Camp Wannaklot – Hemophilia of Georgia
Summer camp for children with bleeding disorders.
www.hog.org
Phone:  770.518.8272

Camp Hawkins
Residential summer camp for children 8-21 with developmental  disabilities. Sponsored by Georgia Baptist Children’s Homes and Family Ministries.
Phone:  770.463.8645

Camp Kudzu
Provides education, recreation and peer-networking programs for children living with juvenile diabetes.
Phone:  770.947.3103
campkudzu.org

Camp Rainbow
Residential summer camp for children ages 4-16 with cancer and blood disorders who are patients at thae MCG Children’s Medical Center.
www.mcghealth.org/cmc
Phone:  404.325.7979

Camp Twin Lakes
Offers multiple specialty camps for a chilren living with a variety of medical and development challenges. www.camptwinlakes.org

Camp TBI (To Be Independent)
Sponsored by Walton Foundation for Independence, this camp is designed for children 8 – 18 (or up to 21 if still in school) with acquired brain injuries.
Phone:  706.533.8076

Evaluation & Medical Services

Child Neurology Associates, PC
Child Neurology Associates, P.C.
Telephone: 404.256.3535
Fax: 404.847.9596

Children’s Medical Services (CMS)
Statewide program with medical and financial eligibility that provides or arraganges speciality services for children birth to 21 with chronic medical conditions.
http://www.health.state.ga.us/programs/cms/
Phone:  800.229.2038 or 770.451.5484

Hippotherapy & Therapeutic Riding

Chastain Horse Park Therapeutic Program
NARHA Premier Accredited Center.  Offers year-round equestrian assisted activities and therapies for children with physical, cognitive or emotional challenges.
www.chastainhorsepark.org
Phone  404.252.4244

Specialty Programs for Children in Crisis

Angel Flight of Georgia
Provides free air transport to people who need to travel for specified medical treatment, therapy, or cancer treatment tha is potentially life saving and not available in their local area.
www.angel-flight-ga.org
Phone 770.457.7958

Stephen Ministry
A ministry at Mt. Pisgah church that supports families and individuals in crisis, including hospitalized and disabled children and their caregivers, with personal support and counseling.www.mountpisgah.org, 678-336-3231.

Childkind
A foster and foster to adopt agency for medically fragile children
www.childkind.org
Phone;  404.248.1980

Best Buddies
Pairs teens (or adults) with a Buddy their age who has an intellectual disability to hang out with and get to know.
For more information  go to http://bestbuddies.org/best-buddies

Educational programs and services provides by IDEA (Individual with Disabilities Act)

Georgia Governmental Support

Babies Can’t Wait of Georgia Early Intervention
http://health.state.ga.us/programs/bcw/

Special Needs Preschool
http://health.state.ga.us/programs/bcw/

Federal Programs

Social Security Income
Phone: 800.772.1213

Deeming Waiver (Formerly known as the Katie Beckett Waiver)
Contact:  Georgia Medical Care Foundation
Phone:  800.982.0411

Services for Sensory Impaired Children (Vision & Hearing)

BEGIN (Babies Early Growth Intervention NEtwork)
Phone: 404.875.9011

Georgia PINES (Georgia Parent Infant Network for Educational Services)
Phone:  404.296.7101