Fragile Kids Foundation acknowledges that the challenges caregivers of special needs children face are immense and unique. Many of our nonprofit partners and healthcare providers offer resources in a variety of areas to support families caring for medically fragile children.
Referral Partners and General Support of Medically Fragile Children
Traumatic Brain & Spinal Injury Trust Foundation of Georgia
Bert’s Big Adventure
Support to families of medically fragile children or children diagnosed with a terminal illness with an annual all expense paid trip to Disney world. Berts Big Adventure
Travis Roy Foundation for Spinal Cord Injury Survivors & Research
Grant program offers assistance with home modification and equipment
Chapel Hill Training Outreach Program
Links to a respite locator service listed alphabetically by city for locations in Georgia.
United Cerebral Palsy of Greater Atlanta
Phone: 770. 676.2000
Champions for Children
Helps provide financial assistance for supportive services to help cover the cost of caring for their children at home
Parent to Parent of Georgia
Statewide network of parents who’s children have disabilities or chronic illness
Brain Injury Association of Georgia
Provides community support programs assisting individuals and their families to have a better understanding of the effects of brain injury and to facilitate rehabilitation opportunities.
Phone: 800.444. 6443
Kiddos Clubhouse Foundation
Provides children with scholarships for critically needed physical and occupational therapy.www.kiddosclubhousefoundation.org
Down Syndrome Association of Atlanta
DSAA enhances the lives of individuals with Down syndrome and their families through support, education, advocacy and awareness.
Easter Seals of North Georgia
Provides services, education, outreach, and advocacy so that people living with disabilities can live, learn, work and play in our communities.
Pediatric therapy services in-home, at childcare centers or at Easter Seals locations
FOCUS (Families of Children Under Stress)
FOCUS provides emotional, informational, and physical support to parents of children with disabilities or with ongoing medical needs. FOCUS families deal with a variety of developmental delays, including rare syndromes, cerebral palsy, heart problems, immune deficiencies, and neurological involvement
Governor’s Council of Developmental Disabilities for Georgia
Providing information, services and programs to children with autism and related disorders, their families and those who live and work with them.
Spina Bifida Association of Georgia, Inc.
Promotes the achievement of full potential for persons born with spina bifida while emphasizing the prevention of this birth defect.
March of Dimes
Provides educational materials which promote the health of babies by preventing birth defects and infant mortality.
Brain Tumor Foundation for Children, Inc.
Provide financial assistance, social support, and information for families of children with brain and spinal cord tumors.
Specializes in medical treatment, research and rehabilitation for people with spinal cord injuries, acquired brain injuries, multiple sclerosis, chronic pain and other neurological conditions.
CURE Childhood Cancer
CURE Childhood Cancer is focused on supporting childhood cancer experts, locally and nationally, who are working daily to discover the ultimate solution.
Georgia Organization of Parents of Blind Children (GOPBC)
A national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.
Prevent Blindness Georgia
Volunteer health agency provides free vision screenings for pre-kindergarten classes
National Kidney Foundation of Georgia
Provides dialysis clinical referral, vocational rehabilitation, financial assistance, summer camp etc.
Provides residential services, day programming and skilled nursing care for adults with developmental delays
Muscular Dystrophy Association
Provides informational materials, networking/matching, referrals to local resources and summer camps
Myasthenia Gravis Foundation
Provides information, education and support.
Prader-Willi Syndrome Association of Georgia
Provides education and advocacy information on Prader-Willi Syndrome, respite, individual and family support
Specialty Resources for Children with Physical and Medical Challenges:
Lekotek of Georgia
Teaches new and creative ways to make play successful and interactive for children with special needs. Loans adapted and traditional toys for families to use at home and provides individualized support and resources to build on existing family strength
FODAC – (Friends of Disabled Adults & Children)
Provides assistance with donated and refurbished medical equipment and may assist towards funding to build a ramp for home accessibility.
Phone: 770.491.9014 or 866.977.1204
Catalogs, products, and information provide solutions for professionals and parents working with and raising children with special needs.
Provides individuals with disabilities, their families and support professionals access to assistive technology devices through a lending library, demonstrations, training classes, information and referrals.
Atlanta Alliance on Developmental Disabilities
Provides advocacy, collaborative recreation programs, referrals, transportation services, life skills training for students and more.
ATLANTA AREA SCHOOL FOR THE DEAF (AASD)
Georgia’s Unlock the Waiting List Campaign
Advocates working to eliminate waiting list for home and community based services for people with disabilities.
Adaptive Learning Center
Maximizes the potential of young children with disabilities, and creates awareness and acceptance between people with and without disabilities.
Elaine Clark Center for Exceptional Children
Accredited, non-profit early-intervention program dedicated to special needs children from 6 weeks to 12 years old.
Child development center and adult day services.
Preschool program of the Atlanta Speech School for children ages 3 and 4 with speech and/or language difficulties.
Atlanta Ronald McDonald Houses
Provides temporary housing and emotional support to families of critically ill and injured children who must travel to Atlanta area hospitals.
Hope House Children’s Respite Center
Provides onsite respite care for medically fragile children and in-home respite care for other special needs children.
Metro Atlanta Respite & Developmental Services
Offers respite services as well as an early intervention program, inclusive childcare center an d therapy services.
A Labor of Love
Offers consulting and assistance to parents of children with disabilities complete the Deeming Waiver forms and assit in organizing information to be sent.
Special Olympics Georgia Family Action Network
Parent organization offers support and activities for families.
ALTA Foundation Wheelchair Tennis
Offers free instructional clinics in spring and fall.
Sports summer camps for youth ages 10-18 with physical disabilities.
American Association of Adapted SPORTS Programs
Interscholastic sports for kids with physical disabilities – elementary through high school.
Hope in the Meadows
Offers a full inclusion day camp for campers with developmental disabilities ages 6-18.
Lekotek Summer Computer Camp
Campers with physical, cognitive and/or sensory disabilities learn with siblings and peers to play using adaptive technology.
Spina Bifida Summer Program
Focuses on independent living, mobility, social and cognitive skills
Camp Wannaklot – Hemophilia of Georgia
Summer camp for children with bleeding disorders.
Residential summer camp for children 8-21 with developmental disabilities. Sponsored by Georgia Baptist Children’s Homes and Family Ministries.
Provides education, recreation and peer-networking programs for children living with juvenile diabetes.
Residential summer camp for children ages 4-16 with cancer and blood disorders who are patients at thae MCG Children’s Medical Center.
Camp Twin Lakes
Offers multiple specialty camps for a chilren living with a variety of medical and development challenges. www.camptwinlakes.org
Camp TBI (To Be Independent)
Sponsored by Walton Foundation for Independence, this camp is designed for children 8 – 18 (or up to 21 if still in school) with acquired brain injuries.
Evaluation & Medical Services
Child Neurology Associates, PC
Child Neurology Associates, P.C.
Children’s Medical Services (CMS)
Statewide program with medical and financial eligibility that provides or arraganges speciality services for children birth to 21 with chronic medical conditions.
Phone: 800.229.2038 or 770.451.5484
Hippotherapy & Therapeutic Riding
Chastain Horse Park Therapeutic Program
NARHA Premier Accredited Center. Offers year-round equestrian assisted activities and therapies for children with physical, cognitive or emotional challenges.
Specialty Programs for Children in Crisis
Angel Flight of Georgia
Provides free air transport to people who need to travel for specified medical treatment, therapy, or cancer treatment tha is potentially life saving and not available in their local area.
A ministry at Mt. Pisgah church that supports families and individuals in crisis, including hospitalized and disabled children and their caregivers, with personal support and counseling.www.mountpisgah.org, 678-336-3231.
A foster and foster to adopt agency for medically fragile children
Pairs teens (or adults) with a Buddy their age who has an intellectual disability to hang out with and get to know.
For more information go to http://bestbuddies.org/best-buddies
Educational programs and services provides by IDEA (Individual with Disabilities Act)
Georgia Governmental Support
Babies Can’t Wait of Georgia Early Intervention
Special Needs Preschool
Social Security Income
Deeming Waiver (Formerly known as the Katie Beckett Waiver)
Contact: Georgia Medical Care Foundation
Services for Sensory Impaired Children (Vision & Hearing)
BEGIN (Babies Early Growth Intervention NEtwork)
Georgia PINES (Georgia Parent Infant Network for Educational Services)