Each year, Fragile Kids Foundation aids more than 400 families with equipment grants and by sharing therapy and rehabilitative equipment through a loaned equipment program. Here is a snapshot of some of the awesome kids, many raised by single mothers and grandmothers, that we were privileged to help:
David has hemiparesis (weakness on one side of the body) and subdural empyema, or fluid and secretion build up in bone and facial tissue resulting in brain damage. His single mother requested several equipment to allow her to safely enter the bathroom with his wheelchair and take care of his toileting and hygiene needs safely and with dignity.
Jaylah has Cerebral Palsy and other developmental disorders.. Her mother requested aid for a stair lift for their home, since Jaylah’s size now does not allow her mother to lift her and carry her up the flight of steps to the bedrooms and bathtub in the house. Her mother has fallen and injured both Jaylah and herself in attempting to transport the child up the stairs without a stable lift system.
Crystal has Angelman Syndrome. Typical features of Angelman syndrome are a small head (microcephaly), epilepsy, severe learning difficulties (with poor communication skills and little or absent speech), an unsteady or ataxic gait, characteristic facial appearance and a happy disposition. Her mother asked for a specialized car seat that Crystal’s therapist thought crucial for her safe travel by auto, yet was not covered by insurance programs.
Skylee has Cerebral Palsy and seizure disorder and is cared for by her single mother whose annual income is less than $15,000. They were in need of a “pixie stroller” to accommodate her small size before the need for a wheelchair, while providing supports and straps to keep the child safe during transport.
Blake has Duchene Muscular Dystrophy and his cared for by his single mother. She came to us after taking numerous falls attempting to lift Blake into their van. A large boy, the muscle atrophy in his legs has become more severe in the past year, as is typical of this form of Muscular Dystrophy. He can no longer participate in reaching out of his wheelchair and into the van. His mother requested an electronic lift for the van, after securing a portion of the funds from her local church.
Evan, age 10
Evan has Cerebral Palsy and other developmental delays and seizure disorder. He is cared for by his single mother. She has been having difficulty now that he is older getting his wheelchair up the two front steps of their home and requested a ramp to safely transport him into the house.
Julius, age 1
Julius suffers from holoprosencephaly, a condition resulting in a single-lobed brain structure and severe skull and facial defects. In most cases of holoprosencephaly, the malformations are so severe that babies die before birth. Julius has numerous other birth defects and global delays, as well as blindness and seizures. His family requested a Kaye corner chair at the recommendation of their physical therapist. This will allow them to feed him and administer medications, as well as work on upper body strength, safely. They have agreed to donate the chair to our Loaned Equipment program when Julius has outgrown it in a few years.