The Fragile Kids Foundation (formerly the Foundation for Medically Fragile Children) is a 501(c)3 nonprofit organization and was formed to assist those families in need of aid to care effectively for medically fragile children.
Mission and Goals
The mission and goals of our Foundation have remained consistent for over 20 years of continuous operation. We provide rehabilitation equipment and quality of life enhancing products that are not covered by private insurance, Medicaid or Georgia’s PeachCare system. These items include wheelchair lifts, wheelchair ramp construction, gait trainers, stabilizing chairs, bathing and toileting aids, pediatric strollers, specialized bicycles and much more.
Who We Help
The term “medically fragile” applies to a wide range of diagnoses including Cerebral Palsy, Muscular Dystrophy, Spina Bifida, Mitochondrial, Rett;s Trisomy, Angelman’s, heart and respiratory disease as well as genetic disorders and traumatic injuries. We believe the total population of medically fragile children in Georgia numbers between ten to fifteen thousand children.
Filling the Insurance “Gap”
Over the last twenty years, medical and technological advances have significantly increased the life expectancy of medically fragile children. The needs of the children once discharged from hospitals and medical programs have outpaced our community, insurance and governmental program’s ability to provide these costly yet crucial items for families in need. The result is an ever widening “gap” between what a medically fragile child needs to thrive and what they can obtain through insurance or by their own means.
Our experiences over these years of operation have illustrated that many of the families that turn to us for assistance are at the lowest income levels, crippling their ability to obtain lifts, specialized equipment or supplies on their own. The economic and emotional burdens of caring for medically fragile children also contribute to a high incidence of divorce and abandonment. In 2011, 52% of our medically fragile children were cared for by their single parent or grandparents.